A few months ago, Laura, and her husband Bryan, received very difficult news. Fox news reports:
Bryan and Laura Hadley were told their 10-year-old son Peyton suffers from Niemann-Pick Type C, a disease that is believed to affect just 200 people, it is reported. The condition interferes with Peyton's ability to metabolize, causing harmful amounts to accumulate in his spleen, liver and brain, and leading to neurological deterioration.The Hadley's are facing the real likelihood that 2 of their children have it (one has been diagnosed) and the possibility that the third does as well (they are still awaiting test results). In addition, the medication that they are in need of is about $9000/month for ONE child.
The result of the disease, referred to as "childhood Alzheimer's", is an enlarged spleen and liver, poor muscle control, impaired movements, slurred speech and dementia, according to the report.
It is a fatal condition for which there is no cure and no treatment options.
The Hadley's fear their daughter, Kayla, 7, also has it and are awaiting DNA test results. Their youngest son, Jonah, 5, was born before Peyton was diagnosed. He is being tested and currently has no symptoms, it is reported.
Their website says:
Unfortunately, Zavesca is a new drug, and the cost for one 100 mg pill is $100. Our child(ren) will be taking up to three 100 mg. pills each day, which is over $9000 per month for one child. Currently, our insurance has agreed to cover half of the cost for a one year period, after which time, they will review the progress of the drug, and either approve or deny further coverage.As with anyone facing such a huge financial burden, they could use our help.
I have been trying to come up with a way to help, in addition to LOTS OF PRAYER, and I was inspired by Suzanne's Christmas Challenge. So, here is a Lenten Challenge for you all, as we prepare for Easter, and remember what is truly important!
Easter Hope Challenge
It is simple and fun... Here is what you do:
1. I have added a Paypal "Donate" button to my sidebar. All I'm asking you to do is make a donation IN ANY AMOUNT that you can spare. You can donate one dollar, two dollars, five, ten, twenty or more. You decide. The dollar amount is entirely up to you.
2. Then, come back and leave your name in the comment box of this post for a chance to win your choice of one of three great prizes--the prize is my donation to the Easter Hope Challenge.
(Basket is subject to availability--it will be your choice of the above or of three similar ones.)
Want to increase you chances of winning?? While every donation receives an entry, for each $25 increment donated another egg goes in the basket for you. For example, a donation of $1-$49 receives one entry, $50-$74 equals 2 entry's, etc. It's all up to you!! You can decide how much you want to donate, and if you win--you choose your prize!!
The contest will be open for 2 weeks, and as the days go by, I will write the names that appear in the comment box on little pieces of paper and place them inside plastic Easter eggs. On Wednesday, March 19th, Chiquita will choose an egg from the basket, and reveal the winner. There will be ONE winner and that winner will choose ONE of the three great prize options above.
If you would like to participate but don't want to use paypal, leave me a comment with your email, and I will be in touch.
All funds donated will be given to the Hadley's in the form of a check to be deposited to the Hadley Hope Fund at Liberty Bank.
So, what are you waiting for? Play now, have fun, and spread a little
~ AND PLEASE, PLEASE, PLEASE, PRAY FOR THE HADLEY'S!!~